The Canadian Donation and Transplantation Research Program publishes a wide range of accessible "fast-facts" documents that the public can use to learn about organ donation/transplantation issues such as the shortfall in supply, consent, opt-out, alcohol abstinence, medical assistance in dying, and more. Following our conference in 2020, CHLPE drafted a number of these fast-facts. All are available at the CDTRP website.
As always, you can also find videos of all the conference panels on our YouTube channel.
We invite applications from JD students/ JD graduates interested in pursuing a Master in Laws (LLM) project with a focus on how human life cycles are understood. We hope to hear from JD students who have an interest in health law, geriatric law, maternal health law, Indigenous law, and others. The legal and health care communities are becoming aware that their abilities to understand and respect all bodies of knowledge regarding birth, life, and death are still minimal. Co-supervised by Professors Jennifer Chandler and Signa Daum Shanks, the LLM student will have an opportunity to broaden their academic efforts in health law, Indigenous law, and the history of health sciences reinforcing colonizing attitudes about the value of Indigenous knowledge. Finding in thhe amount of $15,000 is available. (English only)
We are delighted to announce that Maureen McTeer's most recent book, FERTILITY: 40 Years of Change has been published by Irwin Law. This book explores key medical, research, and legal developments in assisted human reproduction since the birth of the first IVF baby in 1978. With keen insight, Maureen analyses how Canada has responded to the many legal and societal opportunities this foundational reproductive technology has created, such as new types of human relationships; the treatment of infertility; human embryo research; and the revolutionary possibilities for society raised by the combination of reproductive and genetic technologies, as we create, manipulate, and alter human life in the laboratory.
In recent years, some people with visual impairments have regained some degree of sight with the help of “bionic eyes”. But now the company behind the implants has stopped supporting the technology. Hear how that’s left some people in the dark, from Eliza Strickland, Senior Editor at the tech publication IEEE Spectrum, and CHLPE’s Professor Jennifer Chandler. On CBC's The Current:
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See also Their Bionic Eyes Are Now Obsolete and Unsupported, in IEEE Spectrum>
Raywat Deonandan is co-investigator on a new grant-funded project led by Angel Foster: Exploring the Impact of COVID-19 on Abortion Care in Canada: A Mixed-Methods Study Dedicated to Service Delivery and Utilization. The project is funded by the Canadian Institutes of Health Research (CIHR) over a two-year period. You can see Angel Foster along with Melissa Upreti, Joanna Erdman, and CHLPE's Daphne Gilbert in last week's webinar, Rights to Abortion: 2022 and Beyond.
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Recent outrage by some members of Parliament about an alleged secret collection of Canadians’ data by the Public Health Agency of Canada illustrates how misguided many are about the various kinds of personal data – and how they should and should not be used. Michael Wolfson writes in the Globe & Mail...
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See also Canadians’ health data are in a shambles…
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According to the Canadian Mental Health Association one in five Canadians is currently living with mental illness. By age 40, half of Canadians have suffered—or are suffering—some form of it. Between 2009 and 2019, there was a 60% increase in emergency department room visits and hospitalizations among adolescents. Only one in five young Canadians gets the treatment needed. The Mental Health Commission of Canada estimates that mental health problems and illnesses cost Canada about $50 billion per year. We can and must do better. Yasmin Khaliq writes in the Ottawa Citizen...
When vaccine passports or certificates launched in Ontario it was a development welcomed by some and strongly opposed by others. The launch raised a myriad of legal, ethical, privacy, and policy issues as jurisdictions around the world grapple with the continued global pandemic and the unusual requirements of demonstrating vaccination in order to enter some public or private spaces. On September 27 CHLPE's Colleen Flood, Bryan Thomas, and Kumanan Wilson were joined by Vivek Krishnamurthy, Director of uOttawa's Canadian Internet Policy and Public Interest Clinic (CIPPIC), as well as Marie-Eve Sylvestre, Dean of Civil Law. Catch up on the full video of the webinar and discussion here.
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Also hear Colleen Flood on the Law Bytes Podcast, hosted by Professor Michael Geist.
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CHLPE’s Patrick Fafard was interviewed by Markham Hislop on the role of Science Advisory Groups and scientific evidence and advice in general in how governments manage the pandemic.
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Digital technologies are briskly transforming how the law is administered. The eco-system in which courts operate has shifted sharply and precipitously during the pandemic, which dramatically hastened "judicial digitization" on a scale and at a pace that our court system would never have contemplated previously. This has culminated, for example, in court proceedings transpiring on Zoom, Teams and the like. This de facto marriage of convenience may in a word best be characterized as an unstructured partnership prematurely born out of necessity… Karen Eltis writes in the Federmann Cyber Security Research Centre's Cyberlaw Blogospace
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AI in healthcare has the potential to improve clinical outcomes, healthcare quality, and objectivity in clinical decision-making. However, it also has the potential to perpetuate or exacerbate discrimination in healthcare by producing outputs on the basis of arbitrary traits such as race, sex, and sexual orientation taken in ways that are not clinically relevant. Such discrimination may arise from any combination of algorithmic bias (bias in coding or the machine learning implementation) or data bias (the use of non-representative training data, including data masking systemic discrimination). If these problems are not mitigated, the benefits of AI in healthcare AI are likely be realized at the expense of marginalized groups. This is a complex problem that requires concerted responses from government as well as private actors...
Bradley Henderson, Colleen M. Flood, and Teresa Scassa write in preprint, hosted on SSRN.
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Find out more about the Machine M.D. research project >
Canada’s federal election results had barely been counted when the Premiers resumed making their well-worn demands for more federal health care money. Instead of thanking Ottawa for the billions it has already provided for fighting COVID-19, or asking for short-term pandemic-related funding, the ritual chorus seeks ever-increasing amounts of money for decades to come. Granted, the need for more money certainly feels urgent right now. A number of provinces are having difficulty even staffing their hospitals, after almost two years of burnout-inducing working conditions for front-line health care workers. However, the premiers’ multibillion-dollar asks have been for unconditional long-term funding, well beyond the scope of the current crisis. It is entirely reasonable to ask them to explain how the money will be used—especially since spending more on health care does not automatically mean better health outcomes. CHLPE's Michael Wolfson writes.
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Ontario's health care system has been battered by COVID-19, medical staff have been pushed to their limits, and there's a massive backlog of diagnostic and surgical procedures built up due to shutdowns. Has the time come for private health care to help fill the gaps? CHLPE Director Colleen M. Flood appeared in a panel on TVO's The Agenda.
Chair of CHLPE's Advisory Board, Professor David Sweanor, as well as CHLPE member Patrick Fafard were among 100 signatories of an open letter to the 182 parties (countries) to the Framework Convention on Tobacco Control to take a more positive stance on tobacco harm reduction. The letter pushes back against WHO’s drive for prohibition or excessive regulation and taxation of vaping products, heated and smokeless tobacco products, and novel oral nicotine products: "Cigarettes and other smoked tobacco products are responsible for the vast majority of the deaths caused by tobacco use globally. Smoke-free nicotine products offer a promising route to reducing the harms arising from smoking. There is compelling evidence that smoke-free products are much less harmful than cigarettes and that they can displace smoking for individuals and at the population level."
While the world’s wealthiest countries are paying hesitant citizens to get vaccinated against COVID-19 and stockpiling vaccine supply for potential booster shots, the developing world is struggling to get even a first vaccine into the arms of its citizens. The fact that some of this supply is about to reach its expiration date just adds insult to injury. Adam Houston writes in BioSpace...
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CHLPE's first Summer Institute in Health Law ran in August, focussing on issues of COVID-19. The Institute was comprised of 11 morning/afternoon sessions helmed by 14 professors. 33 attendees including students, nurses, physicians, lawyers, policymakers, researchers, and more completed the program. We had hundreds of applications for a very limited number of spots. But this was only the first in an annual series of Summer Institutes, so we look forward to welcoming a new cohort next year. Congrats to our first round of alumni!
Michael Da Silva, Post-Doctoral Fellow at CHLPE and Lead Research Associate on the AI + Society Initiative, has been appointed to a Health Canada external reference group to tackle how to regulate "adaptive machine learning" artificial intelligence (AI) in medical devices. Such AI changes its operation in response to data acquired over time, with the aim of improving its performance. For example, a device for diabetes management could adapt based on how a patient’s body responds to treatment. This is an exciting advance but it also prevents us from fully know how a device's risks will evolve with use. By current Health Canada regulations, this effectively bars such devices from the Canadian market. The reference group will advise on ways to evolve our regulations to open the door to adaptive AI without unduly compromising safety standards.
As the COVID-19 pandemic took hold in 2020, Chief Medical Officers (CMOs) entered the public spotlight like never before. Amidst this increased visibility, the role is deeply contested. Much of the disagreement concerns whether CMOs should act independently of the government: while some argue CMOs should act as independent voices who work to shape government policy to protect public health, others stress that CMOs are civil servants whose job is to support the government. Such debates about the CMO role can be explained by its inherently contradictory nature, which requires incumbents to balance their commitments as physicians with their mandates as civil servants...
Margaret Macaulay, Patrick Fafard and Adèle Cassola write in the Globe and Mail as well as a deeper take in the Journal of Epidemiology & Community Health.
CHLPE's Colleen M. Flood and Bryan Thomas are public health sub-editors for Lex-Atlas: COVID-19 (LAC19). With nearly 200 jurists participating, this large-scale international project builds a report and analysis of national legal responses to COVID-19 around the world. National responses have varied considerably. Epidemiological performance is but one measure, and a difficult one to judge when transparency is doubtful. Countries have employed emergency powers differently, but understanding them requires attention to the broader constitutional structure in which they are situated. It is hoped LAC19 will assist policy makers in future pandemic preparedness, to fashion ongoing responses to COVID-19, and to assist scholars and historians to come to evaluative judgments of state responses. The project is also a great source for original news and analysis articles, blog posts, and more.
Read Editorial (part I): Mandatory vaccination and the law (Bryan Thomas, co-author) >
Read Editorial (part II): Conditional policies and vaccine passports (Bryan Thomas, co-author) >
CHLPE's Michael Wolfson is Principal Investigator on WellCare, a CIHR-funded project investigating the future of elder care. WellCare is part of a broader international endeavour headed by the EU under the banner Better Lives, Better Years.
An increasing proportion of the population at higher ages combined with increasing life expectancies and declining birth rates could generate major tensions for meeting Canada's elder care needs by 2050. Such needs are approached by some combination of informal care provided by family members and formal care either privately purchased or from publicly funded government programs. The WellCare project will compare the many ways formal and informal care is provided across four countries—Spain, Austria, the U.K., and Canada. With this analysis, complemented by computer modelling, the project will illuminate alternative approaches to meeting caring responsibilities. A central aspect of the analysis will be inter-generational equity. The results will include new insights and actionable policy ideas for Canada. If you would like to learn more, please get in touch at healthlaw@uottawa.ca.
Five authors including CHLPE's Bryan Thomas, Colleen Flood, and Kumanan Wilson examine vaccine passports in the context of Charter rights, privacy rights, and implementation in this C.D. Howe Institute report. The report concludes that a well-designed vaccine passport regime, backed by an equitable vaccine distribution scheme, will likely withstand a Charter challenge. And that privacy issues raised by vaccine passports can be adequately addressed through careful design and regulation. The report suggests some broad principles for the design of a vaccine passport regime, including that passport gating should be limited to non-essential services and that wherever feasible, unvaccinated persons should be accommodated with rapid testing.
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See also COVID-19 Vaccine Certificates: Key Considerations for the Ontario Context by the Ontario COVID-19 Science Advisory Table (Colleen Flood, Kumanan Wilson members).
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And Ottawa Board of Trade Supports Vaccination Passports as a Boon for Businesses in the Ottawa Citizen, interviewing Kumanan Wilson.
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As the COVID-19 pandemic continues, the World Health Organization (WHO), the International Health Regulations (IHR) and countries’ adherence to IHR guidance are coming under scrutiny and review. The IHR require states parties to designate or establish national "focal points" to facilitate information sharing about disease events with WHO. Focal points are responsible for timely notification to WHO of relevant health events, responding to WHO Secretariat requests for event-related information, and ensuring that messages and advice from WHO are disseminated to the relevant sectors within the country. At the request of WHO, a team led by CHLPE's Dr. Kumanan Wilson evaluated the ability of focal points to carry out their functions through in-depth interviews and quantitative surveys.
Read summary findings and recommendations >
Canada’s response to the COVID-19 pandemic has been plagued by many of the same challenges that have affected its response to public health threats over the past two decades. These challenges largely relate to how the federal, provincial and territorial governments work together in a federal system in which responsibility for public health duties is provincial, territorial or local, but in which pan-Canadian coordination is critical. Creating a Canadian Immunization Services using the model for the Canadian Blood Services could address historical challenges related to variability in immunization practices and sharing of data across Canada. Kumanan Wilson, Graham Sher & Jane Philpott write in CMAJ.
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The University of Ottawa has been awarded four new Canada Research Chairs (CRC), one of which is CHLPE's Emmanuelle Bernheim. Emmanuelle's research looks at improving access to the justice system for diverse groups, particularly those living with mental health issues. Read in Droit Inc. about Professor Bernheim's new Social Rights Interdisciplinary Clinic, aiming to help persons with mental health issues and in conditions of homelessness in the Ottawa area.
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