Health information systems
Privacy rights and law
Genetic information
Right to know one's origins
Colleen Flood, Kumanan Wilson, Jason Millar, Céline Castets-Renard, Simon Hatcher, Vanessa Gruben, Jennifer Chandler
Artificial Intelligence (AI) will rapidly transform our healthcare system. Already AI devices and applications are being used to support patients in prevention and health promotion, track patient data, triage care, scan medical images, diagnose disease, and make treatment decisions. At the same, there is great uncertainty as to whether Canada’s legal and governance structures are equipped to address the diverse concerns raised by AI health technologies. This projects seeks to create a set of policy options for the optimal governance of AI technologies in healthcare. The project is a collaboration between scholars, innovators, decision-makers, and medical personnel across a number of different countries.
Colleen Flood, Kumanan Wilson
COVID-19 vaccine passports/certificates are being deployed in different contexts across the world. But uncertainty about the ethics and legality of their use continues to vex the public and policy makers, with Canada as no exception. This project aims to investigate and advise on legal and policy issues around vaccine passports' rationale and design, the government's proper role in regulating them, and persistent concerns over privacy, equity, liberty, and coercion.
Assessing the completeness of infant and childhood immunizations within a provincial registry populated by parental reporting: A study using linked databases in Ontario, Canada
Kumanan Wilson (co-author). Vaccine. 2020. (OPEN ACCESS)
Rapport Canadien: Le déréférencement à l’ère numérique – une approche hybride pour faire le pont entre la vision européenne et américaine du « droit à l’oubli »
Karen Eltis & Pierre Trudel. The Right To Be Forgotten: A Comparative Study of the Emergent Right's Evolution and Application in Europe, the Americas, and Asia. 2020.
Dietitians’ perspectives on the impact of multidisciplinary teams and electronic medical records on dietetic practice for weight management
Ivy Bourgeault (co-author). Canadian Journal of Dietetic Practice and Research. 2019.
Respect for intimacy among persons whose privacy is compromised
Jennifer Chandler, Paul Fedoroff (co-authors amongst others). Journal of the American Academy of Psychiatry and the Law. 2018. (OPEN ACCESS)
Health data and privacy in the digital era
Kumanan Wilson (co-author). JAMA. 2018.
Consumer health informatics aspects of direct-to-consumer personal genomic testing
Brenda Wilson (co-author). Studies in Health Technology and Informatics. 2017. (OPEN ACCESS)
Supreme Court Decision on Genetics Law Missed a Critical Opportunity to Hold Parliament More Accountable
Y.Y. Brandon Chen. CBC News. Aug 2020.
Ottawa must put data first and tie to health funding
Michael Wolfson. Toronto Star. Aug 2020.
Why has Canada’s data collection lagged so far behind?
Michael Wolfson. Blog. April 2020.
How invoking the Emergency Act could help Canada better track, contain COVID-19
Colleen Flood, Teresa Scassa, David Robertson. CBC. April 2020.
Privacy concerns for personal genomic tests
w/ Brenda Wilson. ABC Health Report. Aug 2017.
Systèmes d'information sur la santé
Droit à la vie privée et droit
Information génétique
Le droit de connaître ses origines
Colleen Flood, Kumanan Wilson, Jason Millar, Céline Castets-Renard, Simon Hatcher, Vanessa Gruben, Jennifer Chandler
L'intelligence artificielle (IA) va rapidement transformer notre système de santé. Déjà, des dispositifs et des applications d'IA sont utilisés pour aider les patients à faire de la prévention et de la promotion de la santé, suivre les données des patients, trier les soins, scanner des images médicales, diagnostiquer des maladies et prendre des décisions de traitement. En même temps, il y a une grande incertitude quant à savoir si les structures juridiques et de gouvernance du Canada sont équipées pour répondre aux diverses préoccupations soulevées par les technologies de santé de l'IA. Ce projet vise à créer un ensemble d'options politiques pour une gouvernance optimale des technologies de l'IA dans les soins de santé. Le projet est le fruit d'une collaboration entre des universitaires, des innovateurs, des décideurs et du personnel médical de différents pays.
Colleen Flood, Kumanan Wilson
Les passeports/certificats de vaccin COVID-19 sont déployés dans différents contextes à travers le monde. Mais l'incertitude quant à l'éthique et à la légalité de leur utilisation continue de perturber le public et les décideurs, le Canada ne faisant pas exception. Ce projet a pour but d'enquêter et de donner des conseils sur les questions juridiques et politiques concernant la raison d'être et la conception des passeports vaccinaux, le rôle approprié du gouvernement dans leur réglementation, et les préoccupations persistantes concernant la vie privée, l'équité, la liberté, et la coercition.
Assessing the completeness of infant and childhood immunizations within a provincial registry populated by parental reporting: A study using linked databases in Ontario, Canada
Kumanan Wilson (co-author). Vaccine. 2020. (OPEN ACCESS)
Rapport Canadien: Le déréférencement à l’ère numérique – une approche hybride pour faire le pont entre la vision européenne et américaine du « droit à l’oubli »
Karen Eltis & Pierre Trudel. The Right To Be Forgotten: A Comparative Study of the Emergent Right's Evolution and Application in Europe, the Americas, and Asia. 2020.
Dietitians’ perspectives on the impact of multidisciplinary teams and electronic medical records on dietetic practice for weight management
Ivy Bourgeault (co-author). Canadian Journal of Dietetic Practice and Research. 2019.
Respect for intimacy among persons whose privacy is compromised
Jennifer Chandler, Paul Fedoroff (co-authors amongst others). Journal of the American Academy of Psychiatry and the Law. 2018. (OPEN ACCESS)
Health data and privacy in the digital era
Kumanan Wilson (co-author). JAMA. 2018.
Consumer health informatics aspects of direct-to-consumer personal genomic testing
Brenda Wilson (co-author). Studies in Health Technology and Informatics. 2017. (OPEN ACCESS)
Supreme Court Decision on Genetics Law Missed a Critical Opportunity to Hold Parliament More Accountable
Y.Y. Brandon Chen. CBC News. Aug 2020.
Ottawa must put data first and tie to health funding
Michael Wolfson. Toronto Star. Aug 2020.
Why has Canada’s data collection lagged so far behind?
Michael Wolfson. Blog. April 2020.
How invoking the Emergency Act could help Canada better track, contain COVID-19
Colleen Flood, Teresa Scassa, David Robertson. CBC. April 2020.
Privacy concerns for personal genomic tests
w/ Brenda Wilson. ABC Health Report. Aug 2017.