Health information systems
Privacy rights and law
Right to know one's origins
Colleen Flood, Kumanan Wilson, Jason Millar, Céline Castets-Renard, Simon Hatcher, Vanessa Gruben, Jennifer Chandler
Artificial Intelligence (AI) will rapidly transform our healthcare system. Already AI devices and applications are being used to support patients in prevention and health promotion, track patient data, triage care, scan medical images, diagnose disease, and make treatment decisions. At the same, there is great uncertainty as to whether Canada’s legal and governance structures are equipped to address the diverse concerns raised by AI health technologies. This projects seeks to create a set of policy options for the optimal governance of AI technologies in healthcare. The project is a collaboration between scholars, innovators, decision-makers, and medical personnel across a number of different countries.
Colleen Flood, Kumanan Wilson
COVID-19 vaccine passports/certificates are being deployed in different contexts across the world. But uncertainty about the ethics and legality of their use continues to vex the public and policy makers, with Canada as no exception. This project aims to investigate and advise on legal and policy issues around vaccine passports' rationale and design, the government's proper role in regulating them, and persistent concerns over privacy, equity, liberty, and coercion.
Assessing the completeness of infant and childhood immunizations within a provincial registry populated by parental reporting: A study using linked databases in Ontario, Canada
Kumanan Wilson (co-author). Vaccine. 2020. (OPEN ACCESS)
Rapport Canadien: Le déréférencement à l’ère numérique – une approche hybride pour faire le pont entre la vision européenne et américaine du « droit à l’oubli »
Karen Eltis & Pierre Trudel. The Right To Be Forgotten: A Comparative Study of the Emergent Right's Evolution and Application in Europe, the Americas, and Asia. 2020.
Dietitians’ perspectives on the impact of multidisciplinary teams and electronic medical records on dietetic practice for weight management
Ivy Bourgeault (co-author). Canadian Journal of Dietetic Practice and Research. 2019.
Respect for intimacy among persons whose privacy is compromised
Jennifer Chandler, Paul Fedoroff (co-authors amongst others). Journal of the American Academy of Psychiatry and the Law. 2018. (OPEN ACCESS)
Consumer health informatics aspects of direct-to-consumer personal genomic testing
Brenda Wilson (co-author). Studies in Health Technology and Informatics. 2017. (OPEN ACCESS)
Supreme Court Decision on Genetics Law Missed a Critical Opportunity to Hold Parliament More Accountable
Y.Y. Brandon Chen. CBC News. Aug 2020.
Ottawa must put data first and tie to health funding
Michael Wolfson. Toronto Star. Aug 2020.
Why has Canada’s data collection lagged so far behind?
Michael Wolfson. Blog. April 2020.
How invoking the Emergency Act could help Canada better track, contain COVID-19
Colleen Flood, Teresa Scassa, David Robertson. CBC. April 2020.
Privacy concerns for personal genomic tests
w/ Brenda Wilson. ABC Health Report. Aug 2017.